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Autism - girls severely underdiagnosed and D&I initiatives need to do more

Kim To··ADHD, Neurodiversity, Organisations, Individuals, Wellbeing, Diagnosis
Autism - girls severely underdiagnosed and D&I initiatives need to do more

Who am I? After being diagnosed with ADHD at 26, I became frustrated at the lack of support and awareness of this condition in society and in workplaces. I am trying to build Flair, the first holistic health platform for

Who am I? After being diagnosed with ADHD at 26, I became frustrated at the lack of support and awareness of this condition in society and in workplaces. I am trying to build Flair, the first holistic health platform for people for people with ADHD & other neurodiversity (because I have autism and dyslexia as well). The mission is to empower people with neurodiverse people to thrive.

 

National Autism Awareness month

In this blog post, I share my personal experience with autism and the workplace. It is difficult for me to celebrate being autistic, since the statistics speak for itself. My community is bullied and discriminated against. There is a lot of work to do to raise awareness about autism and for diversity and inclusion strategies in workplaces. Key points:

Autism, Aspergers and ADHD co-occurrence

I have ADHD, dyslexia and autism (or aspergers). ADHD and autism are two distinct conditions, though there are some behavioural traits that overlap. Over 50% of individuals diagnosed with autism also have ADHD (chadd.org). With Aspergers, the co-occurrence is 70%. This means people diagnosed with aspergers are likely to have ADHD traits as well. People diagnosed with aspergers usually have symptoms on the "milder side" of the autism spectrum. The important thing to note here is that it is a spectrum of experiences and symptoms. There is no one set definite list of symptoms. Everyone's experience of autism or aspergers will be different.

The high co-occurrence level of autism and aspergers with ADHD is one of the many reasons I realised I was also on the spectrum. I associate more of my traits with asperger's though.

Autism is severely underdiagnosed in girls

Boys have an autism diagnostic prevalence of 4x compared to girls. This is also similar to ADHD where girls are underdiagnosed. A history of gender bias research in this field has lead to gender biased diagnosticcriteria's. Combined with societal gender norms contributes to the underdiagnosis of girls for autism and other neurodiverse conditions.

As I do more research into ADHD and autism, I realised there is actually very little we know about girls with co-occurring neurodiverse conditions.

It is likely that girls with ADHD and aspergers (people like me), exhibit very different symptoms to what is conventionally understood as autism. I align with the asperger's symptoms of finding it difficult to recognise humour and sarcasm (basically just reading social situations is difficult for me) but I don't align with other listed symptoms such as trouble expressing feelings or preference for routine.

The grim statistics, unemployment and mental health

This is where it gets difficult for me to find autism month a celebration month. The statistics speak for itself.

These statistics make me angry because there is nothing about being autistic that pre-disposes us to unemployment or mental health risk. It is simply the social construct of society and workplaces that do not understand how people with autism think and behave. We are expected to mask and conform in order to function in a society that is not doing enough to accept us for who we are.

D&I never talk about neurodiversity. Now is the time to step up and do more for the autistic community

From my experience, neurodiversity is never spoken about as part of D&I strategy. I wonder why? Is it because neurodiversity is an invisible condition? This has made navigating the workplace a nightmare for me. A lack of awareness and accommodations contributes to the problem. I'll just share some examples of a few things that made my working day a struggle.

What can organisations do to support people with autism?

I don't have all the answers, but these are suggestions I have based on experience

It's time that all organisations recognise that within D&I is neurodiversity and autism. And we need to do more because the statistics show that not enough is being done for the autistic community.

What I’ve Learnt From Coaching 100+ Adults With ADHD (And Why ADHD Might Be the Entrepreneurship Gene)Why Standard Coaching Models Do Not Always Work for Neurodivergent ClientsIs It a Performance Issue or a Neurodivergent Trait? A Guide for Managers
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